VOICEAMERICA.com

   INTERNET RADIO SHOW

   "DISABILITY MATTERS"

   FEBRUARY 24, 2004

 

   HOST:  JOYCE BENDER

 

 

 

GUEST:  JOHN KEMP

 

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Communication Access Realtime Translation (CART) is provided in order to facilitate communication accessibility and may not be a totally verbatim record of the proceedings. 

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   >> Welcome to "Disability Matters" with your host Joyce Bender.  All comments, views and opinions expressed on this show are solely those of the host, guest and callers.  Now, the host of "Disability Matters," here is Joyce Bender. 

   >> JOYCE BENDER:  And welcome to the show.  And as all my listeners know, that music in the back, that sound track, is Ms. Patti La Belle, one of my all-time favorites.  But the reason I chose her for the sound track is because of the song she is singing.  "New attitude" And isn't that what we need throughout the country, a new attitude when it comes to the issue of employment for people with disabilities? 

   And I have to tell you, you are all in for a really big treat.  You are.  Because our guest today is so revered for the work he has done in the area of disability, he is truly a champion and someone that I look up to and think so highly of.  John Kemp.  President and CEO of HalfthePlanet Foundation, but also Principal with Powers Pyles Sutter and Verville.  And it's an honor to have him on our show today.

He is an American legend in the world. 

   John Kemp, welcome to the show. 

   >> JOHN KEMP:  Thank you so much.  You're making me blush.  It's my privilege to be here with you. 

   >> JOYCE BENDER:  Well, it's an honor to have you.  We have listeners throughout the world, so I'm thinking there are probably only two who don't know who you are.  But for the two who don't know who you are, tell our listeners how long you have been a leader in the disability area and an advocate in the disability area. 

   >> JOHN KEMP:  Well, Joyce, I'm 54 years old.  I was born with my disability.  I was born without arms and legs off at the elbows and the knees.  And I got prostheses when I was young.  Age two I got arms and age 4 I got legs.  So I've grown up with my disability all my life and I think my dad made me into an advocate from the very start.  My mom unfortunately died of cancer just after my little sister was born, so my dad raised three of us kids.  And I'm the middle child.  I think he made us all advocates for one thing or another.  So I guess I'd say almost all my life I've been an advocate. 

   >> JOYCE BENDER:  That does not surprise me.  I have to ask you a question.  You made this decision to do this.  But let's face it, there are many Americans with severe disabilities, and not all of them decide they want to do this.  Would you say then it was your father that, you know, caused you or what made you decide to dedicate your life to freedom for Americans with Disabilities? 

   >> JOHN KEMP:  There were some very important people in my life and I think this is true for a lot of folks out there with disabilities who influence us so tremendously.  And I was influenced to become a lawyer by a summer job that I had in a law firm.  My dad raised me to be very aware and be very proud of who I am and who I was with a disability.  And so that growing up he would talk to me often about what was a handicap and what was a disability.  So from the very beginning, he always knew that I had a disability, even before it was popular to say that phrase.  Handicap was something that was actually used when I was growing up.  But he distinguished right away and said if people don't like you, it's their fault.  If people don't accept you for who you are, it's not something that you need to carry around with you.

   He gave me a great deal of pride in being who I am.  And I swear that made me become an advocate, to be proud of who I am and not to accept anybody else putting me down.  So I guess it's my dad and other influencers in my life. 

   The Catholic Church was an influence.  I went to Catholic grade school and high school.  And I went into some inaccessible places and climbed up steps I didn't want to climb up and had difficulty going.  But for the most part, I'm an advocate all by choice.  I had influencers, but I chose this path and I just can't imagine doing anything else.

   >> JOYCE BENDER:  Thank goodness you chose that path.  We wouldn't know what to do without you.  Thank you for making that decision. 

   >> JOHN KEMP:  I'm proud of you for getting the word out around the world about the issues facing people with disabilities.  And I'll follow you anywhere, Joyce Bender. 

   >> JOYCE BENDER:  Well, let me tell you, the feeling is mutual for millions of Americans when they think of you. 

   As a matter of fact, we have a question for you from the west coast.  And the question that came in is:  John, I heard you speak many times.  You are phenomenal.  Thank you for what you're doing for Americans with disabilities.  What do you suggest when you have a child who has a severe disability that cannot deal with the way people make fun of him at school? 

   >> JOHN KEMP:  Oh, my goodness, that hurts I'm sure.  You can just -- I thank you, thank the writer for the nice words. 

   I think we all feel like education is the most important issue here and familiarity.  And you know it's by putting ourselves in society and putting our children in schools that we ultimately will educate the rest of society about the needs and wants of People with Disabilities.  I think that's what my dad did when he put me into a regular school system.  I went to kindergarten all the way through in a regular setting in the early '50s.  And my dad was the big advocate who said it's about letting you see John on a regular daily basis every day, with the same wants and needs and desires, with a bit of assistance, and learn about him. 

   So as difficult as that is, the parent is doing absolutely the right thing.  Hopefully with discussion with the school district, with the teachers, and maybe doing disability awareness for the other students and allowing their child to have some hard times, and maintain their dignity, I think they're making the right decision. 

   >> JOYCE BENDER:  And that is hard.  No doubt about it. 

   >> JOHN KEMP:  It's very hard. 

   >> JOYCE BENDER:  But I agree with you.  As a woman with epilepsy and a hearing loss, I know many people tell me how, you know, you don't know what it's like for a 7th grader to have a seizure, to have a seizure in school right in the middle of the day, in the hall.  Lose bodily control.  Come to and have everyone making fun of them.  But the thing is, we have got to be out there and we have got -- we have to be included.  We have to be included. 

   Now, I think one of the keys you brought up there is doing everything we can to get different organizations to go into the schools and educate them. 

   >> JOHN KEMP:  You bet.  You know, everybody advances a year, each year.  And we change and we have different neighbors in our communities and different school mates and different coworkers.  And a certain amount of recurrent training or regular training and awareness is really an important issue.  You know, airlines require their flight attendants and personnel onboard to go through recurrent training.  Well, we should expect that of corporations and we should expect that of our school systems and anywhere where people need some kind of awareness training experiences.  Training is an important issue here and often done by people with disabilities. 

   >> JOYCE BENDER:  Feelings of discrimination start at a very young age.  That's why the sooner you can get into the elementary schools and start working with children, the better it is, no matter what the group, diverse group is that you're dealing with. 

   >> JOHN KEMP:  You bet.  I must tell you this little story.  I went into a grocery store to get some goods, and I was standing in like aisle 4.  And this kid came up to me and said at the top of his lungs, said Mama:  That guy ain't got no hands.  And he is pointing and screaming.  The mother came up and grabbed the kid's head and twisted it about 180 degrees and started shaking her finger.  No.  Don't embarrass that man.  I said look, in this situation he is doing everything right.  He is curious.  He doesn't understand.  He wants to learn.  I want to tell him.  You know, if you don't let me tell him, you're the one that is causing the barrier here.  I need to tell him because he is curious.  And I really appreciated this woman listening to me and letting me talk to her child.

 

   He had about seven questions.  The curiosity was gone.  In fact, he probably thought I was an okay person, not somebody to fear, even though I have what look like hooks or clamps.  And I was very proud of that parent for allowing me to have this discussion. 

   >> JOYCE BENDER:  Yes, because I always tell people to not communicate is the worst thing you can do.  We cannot answer a question unless you ask. 

   >> JOHN KEMP:  That's great.  Excellent. 

   >> JOYCE BENDER:  You're a principal with Powers Pyles Sutter and Verville.  What do you do for that firm?  What area do you work in? 

   >> JOHN KEMP:  My dad is proud because I finally applied my law degree to the practice of law.  I'm a partner here in a law firm in D.C. I work closely with my colleague Peter Thomas.  And our law firm, with 28 lawyers, is principally a healthcare rehabilitation and disability law firm.  And we also do tax exempt organization work and higher education. 

   In the disability world, we do lobbying and legislative work.  We go down to Capitol Hill on behalf of clients and try to persuade staffers and Congress about whatever are the changes, whether it's about IDEA or the ADA or whatever it might be.  We are down on the hill on behalf of clients, urging them to be more inclusive about people with disabilities.  And I love it.  That's about a third of my practice doing that. 

   I run three nonprofit organizations from the law firm, under professional services agreements.  And then I speak, as the previous e-mailer noted, I give a number of speeches each year across the country, keynote addresses. 

   >> JOYCE BENDER:  See, this is what's wrong.  You don't do enough things. 

   >> JOHN KEMP:  I love what I do.  Just like you do. 

   >> JOYCE BENDER:  You just aren't doing enough! 

   >> JOHN KEMP:  I love what I do.  And you know if it feels good and we think we are helping humanity, you know, amen.  That's what this is all about, I think. 

   >> JOYCE BENDER:  Well, you know what?  I have to tell our listeners, if you ever are looking for a speaker, John Kemp is without a doubt one of the best speakers I have ever heard anywhere.  And I would encourage anyone -- whether you're a corporation or government, I don't care what you're in.  If I had to work with someone as an advisor, this is the person that I'd call. 

   While I'm on that subject, how would they reach you at that firm? 

   >> JOHN KEMP:  They can call me at 202-466-6550.  202-466-6550.  If they want to e-mail me, it's John.kemp@ppsv.com. 

   >> JOYCE BENDER:  Well, you make sure you do that.  Because he, as I said, a phenomenal person he is to work with. 

   John, here we have another question for you from the east coast.  And this question is:  What have you experienced in your life as an adult with discrimination?  Is it as it was when you were little? 

   >> JOHN KEMP:  That's a great question.  I think I probably don't feel it as much, because I think my coping skills have gotten better.  But, every once in a while I do wince at some of the language that is used and quite -- most of the time indirectly, or accidentally, putting me in a secondary role in society.  I think I've done better to cope with some of the discrimination and I feel, because I use a scooter wheelchair to get around for longer walking, I find still some of the inaccessibility and the insensitivities to be just unbearable at times.  I get very frustrated. 

   I'm amazed when I come in and out of buildings that people can't hold the door for me in my scooter.  And I'm amazed at the lack of civility at times in society.  But I don't want to whine here, because I do think that society has learned a lot.

We have grown a lot over the last 40, 50 years and I think we are much more accommodating and accepting. 

   I do think that people with psychiatric conditions and mental illness and other kinds of disabilities like that, I think, are still the ones who suffer the most discrimination. 

   >> JOYCE BENDER:  Hold that thought.  We will be right back after this break with John Kemp, a true legend in this country.  This is Joyce Bender.  We will be back.

  

   >> Welcome back to "Disability Matters" with Joyce Bender.  If you have a question or comment for Joyce or her guest, please call toll free at 1-888-335-5204.  Now, back to "Disability Matters," here's Joyce Bender. 

   >> JOYCE BENDER:  And we're back with our guest John Kemp, who does 20 million jobs, one of which is President and CEO of HalfthePlanet Foundation, well-known throughout the world.  But in addition, he is a partner with Powers Pyles Sutter and Verville in D.C.

   But I know that you're a cofounder of the American Association of People with Disabilities, which is a phenomenally great organization.  Could you tell our listeners about your role and tell them why you think AAPD is so important to our listeners. 

   >> JOHN KEMP:  Well, I'm proud to.  Paul Hearn, who was a legend in the disability world and passed away about six years ago, we were best of friends for a number of years.  I moved to DC in 1990 and we would fill in a little evening time with a couple of cold adult beverages.  And over those adult beverages, we would dream up like what does the disability movement really need?  And we talked a lot about the need for an individual membership organization, where anybody across the United States, especially those with disabilities, could become a member for a very low price and be a member of a national cross-disabilities organization.  It wasn't just about blind or deaf individuals or people with psychiatric conditions, but it was everybody with a disability and our friends and families who wanted to be a part of a movement. 

   And we created the American Association of People with Disabilities.  It was born on the 5th anniversary of the Americans with Disabilities Act on July 26, 1995.  Today, 8 and a half, 9 years later, it is an organization of 100,000 or so members.  It has a budget of about 2 million dollars.  It's led by Jim Weissman as the chairman of the board.  I just stepped down as the chairman before Jim.  And we have a very viable organization with one of the most dynamic young leaders in the disability movement as our President and CEO, and that is Andy Imparato. 

   >> It's all about advocacy.  It's about empowering people with disabilities in the political and economic times of our lives.  And it's really making a difference.  So I'm very proud of what we started.  And can't wait to see where we go with it. 

   >> JOYCE BENDER:  It is a great organization.  And by the way, for any listeners, if you want to also hear Andy talk about AAPD, about -- I'd say four or five weeks ago he was a guest on our show.  As you know, when you go to www.benderconsult.com, you can listen to all the other shows and other guests.  And I agree with you, John, that he is such a dynamic, passionate leader for people with disabilities. 

   Also, AAPD is involved with disability mentoring day. 

   >> JOHN KEMP:  That's a great program that is worldwide.  We have participation each October from every part of the world.  New Zealand joined this last year.  And we think that come this October, we are going to have, you know, we may be in 30, 40 countries along with all 50 states and the District of Columbia.  It's a wonderful program of AAPD.  You can get more information about the day by going to the AAPD website. 

   >> JOYCE BENDER:  Isn't it great how that has grown, the disability mentoring day? 

   >> JOHN KEMP:  I'll tell you one other thing that AAPD does.  We should be proud of it.  Jim Dixon, who is on the staff of AAPD, has been a real leader in accessibility of voting, voting machines and the whole civic participation of People with Disabilities.  And AAPD has filed lawsuits against jurisdictions that have been continuing to buy inaccessible voting machines.  It's just forcing government to comply with a civil right that is so fundamental to the United States that we oftentimes forget about it.  And AAPD won't let that go.  We are all about accessing the political process.  And I'm so proud of AAPD. 

   So thank you for letting me speak about it. 

   >> JOYCE BENDER:  I'm so proud of it, too.  And I just wanted to tell you that I said this on other shows and I know John will concur with this:  If you are listening to this show, you must register to vote.  Everyone must register to vote.  That's why I'm proud that AAPD joined. 

   You know, John, just a few weeks ago, a woman in our organization is a person who is deaf had never voted, and so we went to our website, because we have “Rock the Vote” on our website.  You have the ability now to register to vote.  Now she is registered to vote.  I can't tell you that one thing, how proud that made me.  And I always tell people with disabilities, they are the sleeping giant.  Imagine if you could just get a percentage of this population to vote. 

   >> JOHN KEMP:  You bet.  You know, we don't -- at AAPD we don't suggest that you need to be a democrat or Republican.  It's up to you to live your own values.  But you need to participate and you can't really complain if you don't participate. 

   >> JOYCE BENDER:  That's right. 

   >> JOHN KEMP:  That's my fundamental feeling.  You can whine and you can complain and you can brag if you participated in the process that got us where we are today.  And if you want to improve the life of people with disabilities and society as a whole, you need to vote, like you're saying. 

   >> JOYCE BENDER:  Yes.  The power of the vote.  Just as you said, I agree.  I told someone the other day, it's not who you vote for, it's that you vote.  That's just part of our history, part of the American way of life. 

   Before we move on from our conversation about AAPD John, do you want to tell them about the Gala coming up? 

   >> JOHN KEMP:  I sure do.  I want to find out when Joyce Bender is going to run for President, because we need to be candidates and you need to be a candidate some day! 

   So AAPD is going to have a big Gala celebration that we do once a year, March 16, here in DC.  Tickets are $85.  You can find out more information by going to the AAPD website.  And we are going to have Tony Coelho as the Master of Ceremonies.  We are going to have SAP as one of the lead corporate sponsors, along with Independence Technologies of Johnson and Johnson.  And we recognize the Betz Award winner, Dr. Susan Daniels.  And we recognize three Paul Hearn leadership awardees.  Among other things, other people, we have Congressmen and women coming, Senators, high ranking dignitaries, Secretary of Commerce, Secretary of Transportation, Mineta, just a bunch of wonderful dignitaries and people committed to the disability rights movement here in DC.

   Joyce, you'll be here? 

   >> JOYCE BENDER:  I will.  I won't miss it.  I must say it's a really great event.  And I'm very excited to see Dr. Susan Daniels receive that award.  So that's very nice.  That's a wonderful thing. 

   >> JOHN KEMP:  You have to come and party with her. 

   >> JOYCE BENDER:  That's right.  That's right.  Come and party with her is right. 

   John, how about telling our listeners about HalfthePlanet.  First, why the name?  You know, how did this all come to be?  What is your role there? 

   >> JOHN KEMP:  HalfthePlanet grew out of a dot com based in New York City in the late 1990s and the year 2000.  And it was originally called Adapt Z.  With the "A" and "Z" in caps.  AdaptZ.com.  It was about a website for people with disabilities, their families and friends accessing information, products and services.  The name just --

   (Lost audio)

   Now back to "Disability Matters," here's Joyce Bender. 

   >> JOYCE BENDER:  Well, John, we know you have a lot of fire power, but I've never had a guest on my show ever be able to blow out a satellite that goes around the world.  You're the first.  And, you know, only I have fire power, since I have epilepsy.  This is what I always tell Tony Coelho.  See, as you know, for my listeners, when you have a seizure, too many neurons are going off.  So I tell people that fits my personality, because I have too much fire power.  So John Kemp and Joyce Bender together, are too much even for a satellite system. 

   >> JOHN KEMP:  I think it was you and your explosive, wonderful personality.  

   >> JOYCE BENDER:  Either that, or boy, we have really offended someone.  We have offended someone worldwide, John.  We have offended someone throughout the world.  For you listeners throughout the world, sorry about that.  But we're back.  We just had a momentary explosion here on the satellite system. 

   Anyway, John, back to HalfthePlanet, you were starting to tell us about HalfthePlanet.  Go ahead. 

   >> JOHN KEMP:  HalfthePlanet got its name because 20 percent of our population is people with disabilities.  And at least another 30 percent are friends and family members of People with Disabilities, thus HalfthePlanet.  It's run together and it's HalfthePlanet Foundation.  And what an exciting name and we get so many compliments on the name and it really says, in one breath, or one phrase, the power of our market for people with disabilities.  That's how big the disability market really is. 

   >> JOYCE BENDER:  That's right.  Well, if there's 54 million Americans with disabilities, and then if you add husbands, wives, grandparents, sons, daughters, think of the group you're hitting. 

   >> JOHN KEMP:  And everybody in your family cares about what happens to you as a person with a disability and everybody in mine.  So it could be more than HalfthePlanet.  We wanted to say the whole darn planet, but that would have been too much.  That would have been a little too much braggadocio. 

   >> JOYCE BENDER:  It may have been almost the whole darn planet. 

   What does HalfthePlanet do? 

   >> JOHN KEMP:  HalfthePlanet is focused today on youth, leadership and development for people with disabilities.  We focus in on young people.  And we are working with organizations, such as Mitsubishi Electric America Foundation, which is our partner in working with Boys and Girls Clubs, the National 4-H Council and the National Wildlife Federation, to make sure that those organizations include young people with disabilities on the board, as staff and as program participants.  We do a youth leadership employment program in Napa, California.  And we do training all around the United States on disability awareness and inclusion, focusing in on youth leadership and youth employment. 

   >> JOYCE BENDER:  That is wonderful. 

   >> JOHN KEMP:  Very exciting. 

   >> JOYCE BENDER:  And you're the President and CEO. 

   >> JOHN KEMP:  I'm the President, CEO, we have a six person board of directors.  We have a Vice President of Youth Programs, named Stephanie Stroup.  And she comes from the World Institute on Disability, is a person with a disability, and we have a network of folks that we work with around the United States as our consultants and colleagues.  So HalfthePlanet is a very viable organization.  And to all those who helped us start as a dot com out of New York City, four years ago, five years ago, we carry the torch. 

   >> JOYCE BENDER:  That's wonderful.  What is the website? 

   >> JOHN KEMP:  HalfthePlanet.org.  HalfthePlanet.com will get you there. 

   >> JOYCE BENDER:  And if a company or corporation would want to contribute funds or sponsorship to this organization, who should they contact? 

   >> JOHN KEMP:  They could contact me at Jkemp@HalfthePlanet.org.  Thank you for that. 

   >> JOYCE BENDER:  A lot of times corporations, people tell me they want to get involved with youth leadership or doing something to help young people with disabilities.  Here is a great way right here. 

   >> JOHN KEMP:  You bet.  And we have got some curriculum that will -- I think could be helpful to organizations and corporations.  And if they wanted us to assist them in the training, we could certainly do that as well.  But we really think that young people with disabilities who want to transition from high school to either college or the world of work, especially the world of work, at some point really need to -- we need to focus on how they go about that transition, feeling good about themselves, but also creating a receiving and wonderful environment in which to go, the employer community. 

   >> JOYCE BENDER:  So is the main focus working with high schools and universities to find these students; how do you get them referred? 

   >> JOHN KEMP:  We primarily work through the workforce investment boards and their youth committees.  And we find a very wonderful network already existing throughout the country, workforce investment boards.  They all have youth committees, and we are about educating them to include young people with disabilities and the youth committees and on the board of directors, and then we work with companies as well. 

   >> JOYCE BENDER:  And when you say "getting young people on boards," of what?  What type of organizations? 

   >> JOHN KEMP:  Board of directors of mainstream nonprofits, getting them into hopefully leadership positions, getting them past the entry level positions in companies, having companies think about hiring people with disabilities in professional and management positions.  Not everybody is, you know, has to go through the very first Rung of the ladder.  There are many qualified individuals with disabilities at various levels.  But we are all about creating opportunities at all levels, especially for young people with disabilities. 

   >> JOYCE BENDER:  And have you been successful in getting young people with disabilities on major boards? 

   >> JOHN KEMP:  Well, I would say yes, without a doubt.  We have been working now with the National 4-H council.  They have now included young people with disabilities on their National Board of directors.  The Boys and Girls Clubs of America, I must say, is really committed.  There are 3600 Boys and Girls Clubs across the United States.  And they are taking this initiative very seriously.  They may not have anybody on their board with a disability right at this moment, but they are committed to finding and recruiting and finding and training and placing young people with disabilities on their board of directors. 

   >> JOYCE BENDER:  Well, that is phenomenal.  This is a huge impact.

   >> JOHN KEMP:  And this is really guided by the leadership  of Rana Alward who said:  The nonprofit sector as a whole just isn't doing enough to include people with disabilities on boards of directors and in staff positions and in programs.  And she set about to drive this.  And we are her partner.  We are the partner in this project. 

   >> JOYCE BENDER:  She is another phenomenal person. 

   >> JOHN KEMP:  She is, like you, a dynamo. 

   >> JOYCE BENDER:  She is a dynamo.  Her organization was behind the high school high tech program in Pittsburgh, Pennsylvania, called Tech Link.  It's still going.  And high school high tech, getting high school students with disabilities to continue on, you know, continue on their education, and have exposure to the business world.  It's such a great program.  And it really, you know, connects back to what you're talking about.  And that is -- that is really a tremendous thing.  I applaud you for what you're doing there. 

   >> JOHN KEMP:  Thank you.  Thank you. 

   >> JOYCE BENDER:  Now, a question that we have here from a listener that e-mailed us prior to this show is:  John, I've read about you.  I know a lot about you, and it's all good.  Congratulations on the work you've done helping people with disabilities.  My question to you is:  What do we need to do to get people with disabilities united that work at various organizations? 

   Boy, is that a big question? 

   >> JOHN KEMP:  That's a huge question. 

   >> JOYCE BENDER:  That's a really big question. 

   >> JOHN KEMP:  You know I'm going to approach this from a slightly different angle here, and Joyce I think, please help me here on this because I don't think enough people with disabilities acknowledge that they have disabilities and are out about who they are.  I would think that the number, this is scary, but I think that the number of people who have disabilities but don't acknowledge it at all might be 60 percent, 70 percent of the entire disability population.  There are a lot of people who have health conditions that would -- that would put them in a position of being under the definition of ADA, for example.  But they don't consider themselves to be a member of a civil minority or a social minority group at all. 

   My dad is 85 and has Parkinson's and lives in the Kansas City area.  If I said:  Dad you're a member of the disability community, he would say no, I just have Parkinson's.  He thinks I'm a member of the disability community, in that circle. 

   Part starts with the acknowledgement of us taking pride of who we are, and that's where AAPD and all the training you do and the speaking that I do, this is about empowering people with disabilities to acknowledge who they are and to take our rightful place.  Once we do that, we will have a huge population of voting, a voting block, economic power, so that if we said, you know, some company isn't doing us right and they are openly discriminating against people with disabilities, let's stop buying their products, let's stop watching the TV shows that they advertise on, we could make a difference.  Right now we are not strong enough yet.  And I think we are all about building this muscle that we need, economic and political muscle that we need in this country.

   AAPD and other groups like that are very important to this development.  So that's the way I'd approach it.  Let's start with ourselves and build our own strength up.  But we have a lot of power in where we are today.  We can only get stronger for the future. 

   >> JOYCE BENDER:  I agree.  Well, first of all, there are people with epilepsy that won't disclose that they have epilepsy.  I know, I'll be at a meeting and halfway through my discussion people will say:  You know what?  I have epilepsy, and everyone else falls off their chair because they had no idea.  And the person says:  I never disclosed this.  I never wanted to talk about it because of the stigma attached.  So there are a lot of people with epilepsy who don't disclose. 

   So in addition to people with mental disabilities, there are people with cancer who would not disclose and a lot of other people with disabilities who don't disclose.  Of course, it's fear.  Fear if they are employed, fear of what would happen because of the discrimination that exists today. 

   >> JOHN KEMP:  That's right. 

   >> JOYCE BENDER:  But until we get to the place where we can acknowledge this, we can't deal effectively to fight the discrimination. 

   >> JOHN KEMP:  That's right.  It's a multi-pronged approach.  But one of the prongs is let's acknowledge who we are and be proud of it and get over this like hiding it and fearing it.  We can't move as a movement, we can't get organized as a movement unless we have everyone out about it.  And so that is one starting point. 

   And the other is what -- what part of our life is perfect?  You know, what -- we have -- do we have a seamless integration of services across the spectrum of our lives?  No.  Is it a patchwork of services that get people with disabilities to a minimum level of quality of life?  That's really what we have today.  And we have a hard road to hoe here, and I really think we need the political power and the political strength and the political will to stand up to some of the cuts that are being made and the devastation that is happening in many people's lives.

   And we really need to be more expressive and to then back it up with big numbers of votes in our community. 

   >> JOYCE BENDER:  Yes.  Absolutely.  Think what power we would have if we had, as Andy said, there are 32 million who can vote, registered to vote, how much power we would have. 

   >> JOHN KEMP:  My goodness. 

   >> JOYCE BENDER:  Here is what I think we need to do.  I think all the organizations, we all need to get together, put you on a retainer and have you go across the United States to all the different disability groups.  Because you are a very good ambassador.  And you would be able to work on getting everyone united to work together. 

   >> JOHN KEMP:  Well, I will accept that challenge in a heart beat. 

   >> JOYCE BENDER:  You're nicer than I am here.  When we are talking here, I'm thinking what could we do?  I was thinking wouldn't it be great if we had someone like you on retainer to go to the head of every group, from UCP, the Epilepsy Foundation, every group, and start the how we need to work together, not be fragmented, work together with one mission.  And then go to the, as you said, the workforce investment boards.  And then just go to -- just keep going to all the different groups until we get that message out.  Because we do have so much power, it's just we don't know we have that power. 

   >> JOHN KEMP:  That's right.  We don't even know how strong we are.  We are like bam-bam.  We don't know how strong we are. 

   >> JOYCE BENDER:  Anyone listening out there.  I'm telling you, I say we nominate John Kemp to do it.  You're nicer.  You won't get mad at any one. 

   I wanted to ask you to move ahead and ask you a question about someone that we know. And if we have to go to break, we will.  But Tony Coelho.  You know Tony very well? 

   >> JOHN KEMP:  Well, I'm probably one of about 10 million people who are in his fan club, and maybe 100 million.  This is a leader of leaders.  One of the most outstanding human beings that ever walked the face of this earth.  And one of the most magnanimous and intelligent and caring people in this world.  And I know, Joyce, how much he means to you.  And he means that to me and to millions of People with Disabilities. 

   >> JOYCE BENDER:  We are first in line for his fan club, the two of us. 

   >> JOHN KEMP:  You bet.  And he --

   >> JOYCE BENDER:  As you said, of the 100 million! 

   >> JOHN KEMP:  That's right.  He is an astounding power and force in this country.  And he continues to demonstrate his commitment to the disability movement by challenging presidential candidates.  Who among us can really communicate on a peer to peer level with members of Congress and political candidates?  Presidential candidates?  Tony Coelho is the only one I know. 

   >> JOYCE BENDER:  Me, too. 

   >> JOHN KEMP:  And he takes that responsibility.  He doesn't let it go by.  He takes that responsibility and sends out this challenge, where he asks them to declare, you know, will you do certain things if you became President?  Will you commit to strengthening the ADA and reforming and refining the definition to be more inclusive, like we intended?  And to watch judicial appointments and do these other things?  And who among us can do that but Tony Coelho?  And he did it. 

   >> JOYCE BENDER:  He did.  Listen, we will go to break and we really are going to come back with John Kemp, champion, champion for people with disabilities.  This is Joyce Bender.  We will be right back after break.

   >> You're listening to VoiceAmerica.Com, the world's leader in Internet talk radio.

   >> Welcome back to "Disability Matters" with Joyce Bender.  If you have a question or comment for Joyce or her guest, please call toll free at 1-888-335-5204.  Now, back to "Disability Matters," here's Joyce Bender. 

   >> JOYCE BENDER:  And we're back with John Kemp, President and CEO of HalfthePlanet Foundation and Partner with Powers Pyles Sutter and Verville.  And most importantly, international disability leader who has been recognized for all of his great work.  I'll tell you something, John, I can tell you, you are someone that has had an impact on me that I very much look up to you and I am very, very blessed to have met you in my life. 

   >> JOHN KEMP:  Thank you very much, Joyce.  And you and I will be friends for the rest of our lives.  I admire you so much. 

   >> JOYCE BENDER:  Well, we were talking about our other big friend, and why I brought Tony Coelho up is because I knew you were familiar with this Coelho Challenge.  Isn't that a great thing he did? 

   >> JOHN KEMP:  Well, it's phenomenal, and each of the candidates needs to be responsive to the disability community.  I mean, if we really are representing 20 percent of the population and have 20 percent of the vote, they need to be talking to us about our lives and how government can play a role in helping us accomplish what we want to accomplish.  So, Tony puts the mark right on the spot.  I love it. 

   >> JOYCE BENDER:  I do, too.  And I just want to tell our listeners if you go to benderconsult.com, you'll go into the front page and you'll see a photograph of Tony.  And you will be able to read the Coelho Challenge, which he challenged the Presidential candidates and the President in October.  And really was saying, in so many words, we are a powerful group.  You need to care about us.  You need to care about our quality of life and employment.  Here are the challenges I want.  And, you know, if you want us to vote for you, here is what we want you to do, which I think is so great. 

   And I tell everyone about the Coelho Challenge and I hope more and more people will get it out.  I know that AAPD, you talked about before, did a nice story in their newsletter about that.  But we do need to keep that story out there.

But you know, John, you know my big thing is employment. 

   >> JOHN KEMP:  Yes. 

   >> JOYCE BENDER:  So I have to ask you.  You know, here we are, we still have an unemployment rate of over 70 percent.  Sometimes it's so disheartening when companies talk about it but don't do anything about it.  I often say I'll go to a corporation.  They will take me in and they will say we really get it, look what we have done.  We have a ramp.  We have spent so much money to be, you know, accessible.  We have TTY’s.  We have Braille on all the elevators.  And they have everything except one thing:  Employees with disabilities.  I don't know why they spent this money when they don't have people working there. 

   But, you know, in your opinion, why do you think we still have such a problem getting people with disabilities competitively employed? 

   >> JOHN KEMP:  I think it's the attitudes.  I still think it's the attitudes of those who are in hiring positions.  I think we have created a perception, possibly, that everybody needs accommodations.  And, you know, while everybody has a right to an accommodation, not that many people with disabilities really need accommodations, reasonable accommodations.  But if they did, it should be taken in the same vein as any good human resource manager would be doing for any employee.  Can I get you a different chair?  Can I give you a different light?  Can I, you know, get a desk that fits your body better?  You know, whatever it is.  This is what companies do today. 

   And yet when we think about disability, we tend to think about it as a special program, and a -- it's such a challenge, and it's so difficult.

And you know then we have got small business out there that really wants the cream of the crop and at the same time they think hiring a person with a disability is going to be putting too much of a burden on them.  And they want a jack of all trades and a person with a disability doesn't allow them to hire a jack of all trades. 

   Well, I've got news for them.  There are a lot of Jack of all trades in the disability community and a disability doesn't necessarily interfere with accomplishing everything that a small business might want.  So I think we have got to change the perception of this a bit and really invite employers again to consider hiring a tremendously underutilized resource, and that is people with disabilities. 

   >> JOYCE BENDER:  What do you think, in the disability community with our leadership and all the groups that you're involved with and I'm involved with, what do you think we can do?  What can we do more to try to break down those attitudinal barriers? 

   >> JOHN KEMP:  Well, one is honor champions who are doing it.  Honor companies that really do hire people with disabilities.  And not in a -- not those that hire in a paternalistic way, but those who hire because it's good business.  And I would celebrate those successes.  And I think you have probably done as much as any human being in this country to set the right workforce and to actually supply qualified individuals with disabilities.  I think you do that in Canada and I think you do that here in the United States.  And companies that are practicing this, hiring people with disabilities and moving them up the line as they are, you know, warranted, then I think they ought to be patted on the back and celebrated. 

   I hasten not to pursue the tax code incentives and other kinds of incentives, because I tend to think it's somewhat false.  You know, it makes us different and separate and, you know, I just have a little trouble with trying to give money to corporations just because they do the right thing.  We need to let them know that we are a ready, capable workforce available to assist them. 

   >> JOYCE BENDER:  Yes.  I know exactly what you mean there, John. 

   >> JOHN KEMP:  I'm really reluctant to pursue this tax idea that everybody gets a tax break just for hiring folks with disabilities.  I don't like it. 

   >> JOYCE BENDER:  Versus hiring this person because they have tremendous ability and they are going to be a good investment for your company. 

   >> JOHN KEMP:  That's right.  I think we have just as many super stars with disabilities as there are nondisabled super stars that are waiting to be found.  And the disability is really the only factor that is making that difference. 

   I want to suggest that there are as many goof-offs with disabilities as well.  And not everybody with a disability is a star.  And you need to be firm and fair and disciplined in the way you go about your hiring as well as your firing of people.  But for the most part, there are a lot of folks out there with disabilities who really can contribute to a company's bottom line and they are not being included in the hiring decision. 

   >> JOYCE BENDER:  Yes.  Because the difference is, there is such a large amount unemployed that of course you're able to select from a much, much larger population.  And just as you said, I agree with you, what Tony Coelho always says:  “Right to be hired, right to be fired”.  No pity.  That is the worst thing that can happen.  You just bring aboard a great person for their abilities. 

   >> JOHN KEMP:  That's right.  And if they need some type of change in their work environment to make that an opportunity, an equal opportunity, then you make that.  You do that for any employee, to enhance their productivity and their ability to contribute to the bottom line.  I want the HR managers to really start thinking about this, the SHRM, the Society for Human Resource Management, now led by Sue Meissinger, who was involved in disability issues for 20 years and is the new CEO there.  She would contribute greatly to the knowledge base of companies around the country.  And I think SHRM is another resource for those folks. 

   >> JOYCE BENDER:  Well, that's good.  That's wonderful.  I'm happy to hear that, because we need more people in human resources to open the door. 

   >> JOHN KEMP:  You bet. 

   >> JOYCE BENDER:  That's good.  Well, John you obviously are an example of what you were talking about.  You know, when you were talking about people who are a jack of all trades.  Very successful, able to do and contribute so much.  You surely are that star example. 

   So tell me, what do you attribute to this tremendous success you had in your life? 

   >> JOHN KEMP:  Goodness sakes.  Well, I think it's because I was taught at an early age that I have to contribute to the well-being of my community.  I'm really responsible for myself.  And I also have a wonderful wife, named Sam. 

   >> JOYCE BENDER:  Let me tell you, Sam is another tremendous person who also gives back to -- helps the disability community.  Tell them what she does.

   >> JOHN KEMP:  The Senior Vice President for Marketing and Events for the Lupus Foundation of America.  She works closely with people with Lupus and with companies to educate and inform our people with Lupus about what their lives are going to be like; how to best live their lives with a difficult challenge; and to let them know that there is hope, hopefully coming.  That they are trying very hard to find cures as well as appropriate care and supports for individuals with Lupus. 

   >> JOYCE BENDER:  She is a terrific individual. 

   >> JOHN KEMP:  She is the love of my life, my best friend, and thank you for asking about her. 

   >> JOYCE BENDER:  So I guess that she is one of the reasons that you feel you've been successful? 

   >> JOHN KEMP:  I absolutely put it at her doorstep.  She has given me all the love and support and respect that I possibly can ever imagine.  She is a great partner. 

   >> JOYCE BENDER:  Tremendous.  Well, what do you, through your life, when you look back, what would you say is your -- in your opinion, what are you the proudest of? 

   >> JOHN KEMP:  Well, oh, my goodness sakes.  I'm proudest of being a good friend.  I'm proudest of my family.  I'm proudest of AAPD.  I'm proud of the organizations and the volunteers that I worked with over the years.  I'm proudest of People with Disabilities who, facing horrific challenges in their lives, pull themselves up every day and go out there and do something about it.  And I think that's what gives me a lot of pride in being a person with a disability.  That I'm joined, I'm joined worldwide by people with disabilities who care and that want to do something about it. 

   >> JOYCE BENDER:  Yes, I agree with you 100 percent.  And that surely is a tremendous and wonderful group of people.  Isn't it? 

   >> JOHN KEMP:  I couldn't be prouder of being with any other group.  This is my family.  And this is -- our family, Joyce.  We're brother and sister in this. 

   >> JOYCE BENDER:  Well, I'll tell you, John, it has been truly an honor to have you on this show.  I just want to remind everyone, they can reach John Kemp through either HalfthePlanet.com, or through Powers Pyles Sutter and Verville.  He is a champion.  He is someone you will be honored that you met. 

   And with that, every show we end with a quote.  Our quote today is a quote from Tony Coelho:  "This election has to be about our right to succeed, our right to prosper and pay taxes, our right to lead independent lives, our right to provide for our families.  These are our goals.  And we must make ourselves heard."

   This is Joyce Bender.  Thank you to John Kemp.  See you next week on "Disability Matters."

   >> VoiceAmerica would like to thank you for tuning in.  Please join us next Tuesday at 2 p.m. EST for another installment of "Disability Matters," right here on the Internet leader in talk radio.  VoiceAmerica.Com. 

 

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Communication Access Realtime Translation (CART) is provided in order to facilitate communication accessibility and may not be a totally verbatim record of the proceedings. 

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